© 2026 WRVO Public Media
NPR News for Central New York
Play Live Radio
Next Up:
0:00
0:00
0:00 0:00
Available On Air Stations

Are You A COVID Long Hauler? Send Us Your Questions About Living With Chronic Illness

People walk along a main street in Brighton Beach, Brooklyn on Thursday in New York City.
Spencer Platt
/
Getty Images
People walk along a main street in Brighton Beach, Brooklyn on Thursday in New York City.

Updated on August 6

In some people, COVID-19 symptoms can linger for months after they've recovered from the worst of the illness, even after they've tested negative for the coronavirus. The National Institutes of Health refer to these long-term symptoms as post-acute sequelae of SARS-CoV-2, or PASC. More commonly, it's known as post-COVID syndrome, or simply "long COVID."

People living with this syndrome are known as "long haulers." They might experience organ damage, lung and heart issues, and neurologic problems like brain fog and fatigue. This means that thousands of people, some of whom were previously healthy, are now living with a chronic condition.

If you are a COVID-19 "long hauler," or know someone who is, please fill out the form below. We'd like to hear your questions about the practical, day-to-day reality of managing a chronic illness. Additionally, if you're already living with a chronic illness, long COVID or otherwise, we'd like to hear your tips and advice for people who are newer to this.

We are looking for people willing to share their questions, and we may contact you for an upcoming story. We will not publish or use your responses before contacting you.

This form was closed on August 6.

Copyright 2021 NPR. To see more, visit https://www.npr.org.

Mallory Yu is an associate producer for All Things Considered.
Recent cuts to federal funding are challenging our mission to serve central and upstate New York with trusted journalism, vital local coverage, and the diverse programming that informs and connects our communities. This is the moment to join our community of supporters and help keep journalists on the ground, asking hard questions that matter to our region.

Stand with public media and make your gift today—not just for yourself, but for all who depend on WRVO as a trusted resource and civic cornerstone in central and upstate New York.